My name is Stacey Gilmore I am 19 years old. I was diagnosed with Chiari Malformation 1 in January of 2000. My symptoms are numbness, headaches, dizziness, weakness, loss of balance, trouble with memory, hand tremors sometimes whole body, trouble with voice.  I also have Scoliosis and a Syrinx. 

I've had 2 brain surgeries. The first one I had was February 29, 2000 They drained fluid from the skull and made that area bigger. The surgery lasted 2 hours and i stayed in the hospital for 2 weeks I also layed flat on my back for 8 days. The second surgery I had was June 29,2000 they put in a Shunt. I stayed in the hospital for 1 days and the surgery lasted 30 minutes to an hour. Since the Shunt was put in I had severe pain in my stomach I've had the pain for about a month. Then i experienced severe head aches and I still do. 

Some nights i don't get any sleep and some nights I get some but not much. First my right eye would irritate me kind of like numbness pain then the head ache would come and it stays for 2 to 3 days at the most. I think my eye bothers me the most. So far my symptoms are the same. But my MRI's are improving. That's all for now I will keep you updated. Thanks for listening.


Chip Vierow