Update: 10 years post-op October 2006
It's now been 10 years (!) since the surgery and all is well. I'm even breathing all of the time now too. (Hey, there are some things that I've learned not to take for granted.) The pounding headaches, the fatigue, numbness and tingling, breathing and swallowing problems that I had before surgery disappeared shortly afterwards and have not returned. I've been living a "normal" life (whatever that is) for well over 9 years now and am continuing to work with the World ACM Association and the WACMA Online Support Group on a daily basis, as well as maintaining my Computer Network and Consulting Business and being on call 24 hours a day as a 911 emergency medical responder for the Lower St Croix Valley Fire Department.
Being a staff member and support group leader of WACMA and a business owner with a lot of clients, I tend to get quite a bit of e-mail every day. On some days I get 100-150 e-mails not counting "spam" or support group mail. Please don't let this discourage you from writing- but if I don't answer, I'm not ignoring you I'm just not able to answer every e-mail I get. I answer as many of my e-mail messages as possible between 9 pm and 12 each night.
If you have a question that needs to be answered and you didn't get an answer from me.. please, just write again and say "help" in the subject field. I do want to help you. In some cases I'll forward your message to one of my associates and they'll be happy to answer your questions. Thanks for visiting my web site, and I'm looking forward to hearing of YOUR adventure in dealing with this rare and often misunderstood disease.
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A special thanks to PressEnter, David Bushard and Steven Reisman for this page space.